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TBI recovery Fact Sheet
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The Brain Injury Recovery Network has developed
this site in an attempt to provide practical, actionable advice
for brain injury victims and families. We have just made some
additions to the site and are in the process of adding more.
Feel free to call us with your questions or
comments toll-free at 1-877-810-2100. |
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Traumatic Brain Injury (TBI) is a
leading cause of death and disability among children and young
adults in the United States. Each year, an estimated 1.5 million
Americans sustain a TBI. That's 8 times the number of people
diagnosed with breast cancer and 34 times the number of new cases of
HIV/AIDS each year. As a consequence:
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50,000 people die each year.
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230,000 people are hospitalized
annually and survive.
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80,000 to 90,000 people experience the
onset of long-term disability each year.
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The cumulative result is that today an
estimated 5.3 million people - 2% of the U.S. population - are
living with a permanent TBI-related disability.
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highest among adolescents, young adults, and persons older than
75 years. The risk to males is twice the risk among females. The
major causes of TBI are: |
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Motor vehicle crashes account for 50% of all TBIs and the
leading cause of TBI resulting in hospitalization.
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Violence, especially suicidal behavior and assaults that
involve firearms--the leading cause of TBI-related death.
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Falls--the leading cause of TBI among the elderly.
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These injuries
have both short-term and long-term effects on individuals, their
families, and society and the financial cost is enormous. TBIs
requiring hospitalization cost the nation about $56.3 billion
each year. Approximately 1 in 4 adults with TBI is unable to
return to work one year after injury. The financial cost is
only part of the burden. The long-term impairments and
disabilities associated with TBI are grave and the full human
cost is incalculable. |
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The people
behind the statistics can tell of the terrible devastation to
their lives that a brain injury brings. Our daughter Ashleigh
is one of those victims. She had just finished the last of her
final exams for her senior year in high school on May 28th,
1999. She and her cousin, also a senior, went to a local
sandwich shop to celebrate their last day of high school. On
the way home, their car went off the road and flipped,
end-over-end. Ashleigh suffered multiple skull fractures and a
very severe brain injury. |
At one point we
were told she had only an hour, maybe two, to live. Thankfully,
she made it through that crisis and survived the critical
phase. Ashleigh spent three weeks in the ICU and was
hospitalized for a total of six months following the accident.
We chose not to follow doctor’s advice to place Ashleigh in a
nursing home, and she is now at home with us. People ask our
family how can we deal with this tragedy and the answer is
simply, we have to. |
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Calling on an
inner strength and an unbelievable sense of determination and
will, Ashleigh continues to fight to improve every single day.
The recovery process is agonizingly slow and measured in minute
steps. It continues to be a few steps forward, a few steps
back. At this point, Ashleigh is still very significantly
disabled with limited movement and unable to speak. Yet, we
consider ourselves one of the lucky ones as there are many other
victims in worse circumstances. |
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Sadly, there is
no cure for a brain injury. Recovering from a brain injury
relies on the brain’s plasticity, the brain’s ability for other
areas of the brain to take over the functions for the damaged
areas, and on hard work from the patient and the rehabilitation
team to strengthen the remaining abilities to maximize
functionality. |
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Medical
treatments and procedures do continue to improve and
doctors
have been able to increase the survival rates for brain injury
victims. Some new drugs and procedures, which have to be
employed quickly after the injury, are aimed at limiting the
secondary damage caused by brain swelling and brain cell death
that exacerbate the initial injury. In a longer-term outlook,
stem cells may hold some promise for actually repairing areas of
brain damage. Yet, even with all the advances, still relatively
little is known about the brain, the body’s most complex organ. |
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Frankly, your
loved one is depending on you. You now have to fight through
your grief and step up and take charge of the situation. You
may be asked to make a number of decisions for your loved one.
So, you need to learn all you can, very quickly, to be able to
assist the medical team in setting the best course of
treatment. You need to be a strong patient advocate to insure
they get the best of care possible. You need to maintain a
positive attitude and instill that attitude in both the patient
and everyone in contact with them. If it is indeed possible,
you want to will your loved one to make it through this
crisis.
If your loved
one survives the crisis phase, you will have to continue to be a
positive, supportive, and strong advocate. Recovering from a
brain injury is a long, terribly difficult process. It is up to
you to see that your victim is given every opportunity to fully
recover. |
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If you are
friends of a family going through this situation don’t be afraid
to call and talk to them. Believe me, the families are thinking
about their loved one all of the time, you are not going to make
it worse by asking about them. |
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If you don’t
know anyone directly, there are a couple of ways to help. One
way is to volunteer and get to know a family with a brain
injured victim. You could provide a little respite time such as
reading to the patient so the caregiver can work in the garden,
or go shopping, or even just take a nap. Caring for a loved can
be a highly stressful, 24 hour-a-day job. |
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Another way is
to help us help others with your financial support. Your
generous donation will let us at the Brain Injury Recovery
Network help victims of brain injuries. |
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Call our support line for more information
1-
877- 810- 2100
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